General

Epidermolysis Bullosa 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

Topic	Views	Activity
About the General category General	708	May 30, 2018
Spotlight on Our Moderators General	4	March 30, 2023
“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness General	4	March 29, 2023
When “Rather Rare” Becomes “Done Well” General	20	February 22, 2023
Our New Ben’s Friends Classroom General	30	January 26, 2023
Spotlight on Our Board Member: John Stamler General	48	January 17, 2023
Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool General	25	January 17, 2023
Ben’s Friends Brings Learning About Patient Support to the Next Level General	40	January 6, 2023
Spotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community General	26	December 28, 2022
Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends General	48	December 26, 2022
Ben’s Friends Communities Can Help Advance Medical Treatments General	35	December 8, 2022
Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic General	32	December 8, 2022
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	39	November 24, 2022
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	44	November 17, 2022
Ben’s Friends inks partnership with ClozTalk General	40	November 17, 2022
The Ben’s Friends Volunteer Family is Growing! General	329	July 31, 2020
Rare Disease Diagnosis: Difficulties and Advancements General	47	November 3, 2022
Global Genes’ Rare Daily website features Ben Munoz General	46	November 2, 2022
Some of Ben’s Friends secrets to maintaining healthy communities General	45	October 31, 2022
What’s Your And? Podcast features Scott Orn General	61	October 27, 2022
Depression and Autoimmune and Chronic Illnesses General	285	November 18, 2020
Benefits of Having a Rare Disease and Chronic Illness Support Group General	53	October 20, 2022
Once Upon a Gene podcast Features Ben’s Friends General	53	October 6, 2022
Ben’s Friends Lead Interns General	56	October 5, 2022
Nonprofit SnapCast features Ben Munoz General	45	October 4, 2022
Two Disabled Dudes Podcast features Ben Munoz General	44	September 28, 2022
How Ben’s Friends moderators work as a team General	56	September 27, 2022
4 tips on how to get the most out of your Ben’s Friends patient community General	45	September 22, 2022
You might find a specialist for your rare disease in our Recommend a Doctor pages General	47	September 22, 2022
You might find a specialist for your rare disease in our Recommend a Doctor pages General	58	August 11, 2022